OUR PURPOSE PIONEERING SCIENCE PATIENTS OUR PEOPLE ENVIRONMENT COMMUNITY REPORTING 47 ADVANCING HEALTH ACCESS AND EQUITY BIOGEN 2021 YEAR IN REVIEW Alzheimer’s disease – Consulted USAgainstAlzheimer’s National Alzheimer’s Disease Index, which aggregates Medicare claims data by age, gender, race and ethnicity. This is just one part of our extensive research into the patient journey for underrepresented populations facing Alzheimer’s disease. – Launched the RoAD Show, a series of videos by experts to advance critical conversations around key Alzheimer’s disease topics for all healthcare providers. The first chapter consists of five TED Talks-like videos that cover a variety of health equity topics, including The Underrepresented and Underserved Alzheimer’s Disease Patient Journey by Dr. Dylan Wint from the Cleveland Clinic’s Lou Ruvo Center for Brain Health. Other key topics include cultural competence and cultural humility, the role of the caregiver, the impact of comorbidities on the diagnosis and prognosis of Alzheimer’s disease, and successful engagement of patients and caregivers for research. – Collaborating with Alzheimer’s Foundation of America on a pilot program, Una Mejor Calidad De Vida, to bring culturally competent, Spanish-language testing to Latino communities. Lupus – Conducted extensive research on the patient journey for underrepresented patients living with lupus to better understand drivers and barriers to clinical trial participation and access to treatments (findings were presented to the American College of Rheumatology and Lupus 21 st Century). – Spoke at the Lupus Foundation of America’s ambassador training for minority populations. – Held community events for those living with lupus and partnered with local community organizations to reach representative populations. MS – Partnered with We are Ill, a MS PAG focused on underrepresented populations, to develop a video related to medical mistrust. – Contributed to more than 30 MS publications with expanded definition of health equity, including children, elderly populations, racial and ethnic groups, socioeconomic status and other factors. – Promoted our Spanish-language disease state education programming, Understanding Your MS en Español, across the U.S. SPOTLIGHT Discussing impacts of disease on LGBTQ+ communities Two external experts from Boston’s Fenway Health Institute engaged with Biogen employees to discuss the impact of MS and Alzheimer’s disease on LGBTQ+ communities. The event examined the intersection of MS and Alzheimer’s disease, sexual orientation, and gender identification and expression. Content highlighted ways we can continue to educate ourselves about the health barriers LGBTQ+ individuals face, which can include correct pronoun usage. Biogen plans to help address these issues through efforts such as elevating the importance of these topics in our daily work.
Biogen Year In Review Page 46 Page 48