SEPTEMBER 2018 THINK TANK & FAMILY CAMP Organized by Drs. Walkley and Wasserstein, this intense one-day meeting represented a “first” for Salla disease, where a dozen top notch scientists from the U.S. and Europe came together with an equal number of families affected by this condition. As a result, a Sialic Acid Storage Disease (SASD) Among the participating researchers: Research Collaborative was established and Dr. David Adams, M.D., Ph.D. projects initiated in labs at Einstein and the NIH. Dr. Kostantin Dobrenis, Ph.D. Dr. William A. Gahl, M.D., Ph.D. Dr. Bruno Gasnier, Ph.D. Dr. Marjan Huizing, Ph.D. Dr. Marc C. Patterson, M.D. Dr. Richard J. Reimer, M.D. Dr. Steven U. Walkley, DVM, Ph.D. Dr. Melissa Wasserstein, M.D. Dr. Roberto Zoncu, Ph.D.