SALLA TREATMENT AND RESEARCH OFFICIALLY GOES INTERNATIONAL STAR is officially international! We now have Board Members representing Europe and Latin America! In April, we welcomed Jose Actis of the Dominican Republic (daughter, Martina, age 3) and Kathrine Roa of Norway (daughter, Anea, age 7) to the STAR Board of Directors. This month, Ann Persson from Sweden (son, Elis, age 9 ) showcased the STAR Foundation at this year’s European Conference on Rare Diseases (ECRD-30). Scheduled to take place in Stockholm, it was held virtually due to the COVID-19 pandemic. Ann worked tirelessly, creating a poster and presentation with the help of Mary Hackbarth and Caroline Moberg (son, Johan, age 8). We are thrilled that Ann earned 11th place out of hundreds of participants! We are certain this will garner the attention of more doctors, families, and supporters throughout Europe and Scandinavia. Thank you Ann! 6
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