NEW FUNDING FOR RESEARCH AT THE EINSTEIN COLLEGE OF MEDICINE As many of you know, research at the Albert Einstein College of Medicine, under the direction of Dr. Steven U. Walkley and Dr. Kostatine Dobrenis, has demonstrated promising indicators with the drug Miglustat. Due to the COVID-19 crisis, opportunities to secure scientific grants to continue this research on Salla have been limited. The STAR Board of Directors determined to allocate $25,000 toward this important research to ensure this fruitful work in funded through 2021. This gift was made possible by the generosity of the Kaiser family in Switzerland. Thank you, Kaiser Family! Additionally, our contracts with the NIH and Einstein are being altered to allow for time and science lost during the shutdown. We graciously appreciate the flexibility and partnership with these fantastic institutions! As we look ahead to 2021, STAR is financially healthy, thanks to all of the STAR families and supporters who have raised money and contributed to the STAR Foundation. thank you 3
2020 Progress Report Page 3 Page 5