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THANK YOU! Since our launch in 2018, the Salla Treatment and Research Foundation has made tremendous progress in advancing awareness and scientific research into the ultra orphan rare disease, Salla. With the support of families and friends across the globe, we have raised over $450,000 dollars to directly support research by a growing team of researchers at preeminent institutions. To our Supporters: THANK YOU! Thank you for your words of encouragement and acts of kindness over the past 3 years. Because of you, we have made incredible strides forward to treat this disease! JESSICA FOGLIO PRESIDENT & CO-FOUNDER, We must not lose hope, but persevere amidst the chaos and uncertainty that life can hold, SALLA TREATMENT AND knowing that we are uplifted and supported by all of you. RESEARCH FOUNDATION “The man who moves a mountain begins by carrying away small stones.” - Confucius (551-479 BC) May we continue to move this mountain, one stone at a time! With deepest gratitude, JESSICA FOGLIO SALLA TREATMENT AND RESEARCH FOUNDATION ANNUAL REPORT 2021 - WWW.SALLARESEARCH.ORG SALLA TREATMENT AND RESEARCH FOUNDATION 3

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