Newsletter for families, partners and supporters A year of change, growth and hope Dear STAR families, clinician partners and supporters: This newsletter is filled with exciting news about change, progress and growth for both the STAR Foundation and our clinician partners in the FSASD Consortium. We are excited to share news and updates in this newsletter for November 2023. This past year was also a big change for us as we welcomed our beautiful little sister Lily to the Foglio family. As we approach the holiday season, we are filled with gratitude for all of you and hope for FSASD treatments. We ask for your continued support of STAR and for all our children through your generous donations. Please consider donating directly to STAR or creating a fundraiser this Giving Tuesday as we accelerate research and move closer to therapies! In gratitude, Mike and Jessica Foglio STAR Co-Founders/President Giving Tuesday is Tuesday 28 HIGHLIGHTS OF THIS EDITION November. Consider donating to STAR by Message from the Foglio Family - p. 1 scanning this QR code using Clinician and Family Meeting - p. 2-3 this link: FSASD Consortium Updates - p. 4-7 DONATE NOW STAR Fundraising Update - p. 8-9 STAR Data Collection - p. 10-11 STAR Contact Information - p. 12 NOVEMBER 2023, SIDE 1