Updates Consortium unveils new logo In the scientific literature, “Salla Disease” has been referred to multiple ways. “Salla Disease” (named after the region of Finland which is home to a large number of known cases) or “Intermediate” or “Infantile” Sialic Acid Storage Disorder. Consortium members will now use the same term “Free Sialic Acid Storage Disorder” (FSASD) in papers, publications and products to create a common term for collaboration. The Consortium logo is deep in symbolism. The stars represent the STAR Foundation. The red star symbolizes that each patient and research group is unique, and that many research directions are aligned. Stars are also a ‘beacon of hope – a shining light that guides the way;’ a symbol of positivity, happiness or renewal. The polyhedron shape represents global, multidisciplinary collaboration, and in an abstract way, the sialic acid molecule. Consortium grows to 46 members In 2023 the FSASD consortium has grown to 46 members from 18 research centers across five countries (USA, Finland, France, UK, Germany). Since January 2021 they have met virtually 12 times and twice in a hybrid format (in person & virtual). Members sign a non- disclosure agreement after each meeting which allows for free sharing of knowledge, data and resources. One and five year goals are stressed at each meeting. Accelerating Research Towards FSASD Therapy! NOVEMBER 2023 PG 4