YOUR SUPPORT We remain committed to continuing the research against Salla and continue to support efforts at the National Institute of Health, Einstein College, Children’s Hospital of Orange County, California, and several other key partners all working in lockstep based on the guidance of our Scientific Advisory Board. It is with tremendous pride and gratitude to you all that we are able to secure another year of research with these partners. From the bottom of our hearts and on behalf of all parents and families impacted by Salla, you have our gratitude and our thanks. It is impossible to ignore the impacts of COVID-19; many of the friends and families of the Board and the STAR Foundation have been directly impacted by this awful pandemic. While STAR currently remains in a healthy financial position, we are facing uncertainty in our moderate- term and long-term forecasting like other charities and organizations around the globe. Therefore, in addition to considering a donation through one of the many options (listen herein), we ask that you consider making a non-binding pledge for our records. We hope the pledge option affords our generous donors the following benefits: the ability to show support for those that are currently unable to make a financial commitment but believe they will be able to do so in the future; tax planning of charitable donations (e.g., timing of a contribution on January 1, 2021, for example); the ability to plan the various financial, charitable commitments within the year during challenging economic times; the convenience of being provided a simple reminder from STAR for ease of payment. Finally, it will benefit STAR by improving our financial forecasting, our sponsorship of fundraisers, all of which are dedicated to directing as much money to research as possible and driving results for all Salla stakeholders. On behalf of the entire Board, thank you for your tremendous generosity. We have been humbled by the support we have received ; furthermore, we, as a STAR foundation, entirely run by volunteers, are inspired to use these gifts with a highest and best use to fund a future where no family faces Salla alone. Thank you again. Make a pledge at SallaResearch.org/Pledge Support STAR at SallaResearch.org/Support 9