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The Actis family organized the highest-grossing fundraiser yet for Salla disease during the "Star for Martina" Field Day in Santo Domingo, Dominican Republic. The Foglio family shared the STAR Foundation's story with families of another rare disease, KDM5C, at Einstein College of Medicine. Ann Persson virtually showcased the STAR Foundation at the European Conference on Rare Diseases. STAR scientific advisor Dr. Steven U. Walkley gave a lecture on rare disease collaboration between researchers and families. STAR scientific advisor Dr. Melissa Wasserstein with Ben, age 5, at the Einstein College of Medicine. 8

2020 Progress Report - Page 9 2020 Progress Report Page 8 Page 10