Fundraising update Funds raised by STAR are directly impacting RESEARCH: STAR Donation to Greenwood Genetic Center (GGC): Funds donated by STAR allow Consortium members to have sialic acid values measured (a specialized method) by the same assay method in the same lab, freely and quickly at GGC. Sialic acid values have been measured in patient and mouse cell lines, urine and tissues (including mouse brain). These Sialic acid values help with FSASD diagnosis, disease mechanism and therapy response studies. STAR Donation to fund trainees at NIH Funds donated by STAR provided salary support for trainees Mary Hackbarth and Petcharat Leoyklang from 2020-2023, while they performed research dedicated to FSASD. Their work directly supported NIH accomplishments in mouse models and cell assays. STAR Donation to fund new grant to Université de Paris: STAR recently approved a grant to the laboratory of Dr Bruno Gasnier for his work focusing on drug identification and testing. Funding for this grant was made possible by generous donations from The Kaiser and Ammann families. Thank you! STAR Donation Albert Einstein School of Medicine Funds donated by STAR provided support to Dr Kostantin Dobrenis at the Rose F. Kennedy Center. Funding supports Dr Dobrenis’ work with mouse colonies in search of potential treatments. NOVEMBER 2023 PG 8