Updates (continued) CRISPR technology publication Dr Ray Wang (Children’s Hospital of Orange County Specialists, Orange, CA) led a team publishing “Base editing corrects the common Salla disease SLC17A5 c.115C>T variant” in August 2023. See link or scan QR code below: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10506058/ Dr. Steven Walkley Retires from Albert Einstein College of Medicine At the Tarrytown,New York meeting, we celebrated the retirement of Dr Walkley from the Einstein College of Medicine. We are so grateful that despite his retirement, he will continue on as a member of our STAR and FSASD community. Dear Dr Walkley: Thank you for giving us hope and purpose amidst our diagnosis with Ben. It is because of your efforts at the Rose F. Kennedy Center that so many families like ours are motivated to bring treatments to rare disorders. You have instilled in us an unwavering belief that no disease is too rare for viable research and treatment options. We were the first family to be a part of your IDDRC initiative, and we are certain that this incredible program will forever be a shining jewel within the Rose F. Kennedy Center. Jessica and Mike NOVEMBER 2023 PG 7